First psych assessment

needs: Her first clinical psych assessment

Diagnosis was the beginning. What followed was a series of assessments to determine the best way forward.  For us it was blood work, an EEG, an MRI, clinical psychological testing, occupational therapy, auditory processing and speech therapy. It was expensive and time consuming. Much of our energy was spent on scheduling, traffic time and parking. It meant more school absences when she was already behind academically and socially, separation for her brother and pressure at work for her parents. 

For a period of about 5 months we were taking her to unfamiliar places, with strangers, who pushed her beyond her comfort zone. The assessments were – Repetitive. Targeted. Spotlights. Designed to test her until the point of failure. Some tests stop when there are consecutive wrong answers, making inability and weakness the goal.  With each appointment there was less of her, and more of a patient. Assessments are kryptonite to a family’s means and needs. So why do them?

We did them because we were told to.  That’s the rule follower I was then. We put her through multiple assessments because we were lost and the diagnosis came with a road map that led us there. The first clinical psych assessment embossed the part of me that connects my heart and brain. I trusted a professional with the care of my girl and he was deficient in a way that watermarked my mothering. Now I have my own roadmap.

Being sent to a clinical psych was a bit of a shock for me. I honestly didn’t know what they did and assumed that at 5 I had a little longer to completely mess her up before she needed therapy. I think a lot of people feel this way because the late book at school usually says “appointment” but if its braces it says “orthodontist”. We were told this clinical psych was good because “he could do the auditory stuff as well”.  Convenience really shouldn’t have been a concern for us. My beloved confessed the phone call didn’t give him a good feel but we didn’t act on that. We knew it would be around $600 and we would “get some back later”.  We had an address and knew it would take a whole day. This is where I wow you with the questions we asked and the research we did, but we didn’t.

She was pretty excited about having a day out of school and spending a day with her mum. We drove across town, singing and chatty. This is the part where I could wow you with the careful preparation I did with her but I didn’t. Traffic was shitty and we were in a part of town I never liked as a teenager so it made me gloomy to cross into territory melancholia. Parking was a freaking nightmare and by the time we got in there I was glowing with sweat stress, dragging my angel behind me.

We met the old gruff bastard.  Believe me, they are the kind words I use to describe him 7 years on. He showed us into his crappy room where he had obviously reserved the one without natural light and set it up with a range of old furniture for adults. He showed me to a seat outside his door reminiscent of the principal’s office that had the added bonus of being beside the toilet. He sat our 5-year-old girl on the wrong side of an adult desk with her legs hanging off an old chair, for 6 hours of testing. This is where I impress you with my advocacy and tell you how I didn’t let a stranger take my girl into a room and close the door, but I didn’t.

After 2 hours he opened the door and she came out.  She was smaller.  He muttered about a break.  We cracked the lunch box while he stood over me talking about his qualifications. One thing I have learnt is the specialists with super powers don’t need to tell you about it because a thousand other people have and you had to donate a kidney to get an appointment. My girl and I shared a cuddle and he took her back in.

Two hours later, the door opened. She was smaller still. I had begun texting my beloved crazy shit. I had alarm bells ringing but I was frozen. More muttering about a break for lunch. This is where I could tell you I took her to a nearby park and gave her some fresh air and got her legs moving with some climbing before we had cuddles on a blanket and found animals in puffy white clouds, but I didn’t.

We sat on the chairs outside his office and she moved through her lunch box. My girl was sad but didn’t want to offend him. She whispered without words, desperate sounds. I was only catching threads about ‘not getting things right’ and ‘he was grumpy’ and she ‘couldn’t reach the desk’. And yet the shit show went on, the break was over and she was back in there. It was 24 hours too late to google things like “how to find a good clinical psych” but I did.

After the last two-hour session, he invited me in.  I was braced for the bad news, because I couldn’t imagine this man saying anything good. As she buried herself under my arm, he sprayed words like “abnormal, unsatisfactory, out of range, serious concerns” with authority. I nodded and she soaked it all in. This is where I tell you how I cut him off and indicated I would wait until I read his report, but I didn’t. He referred to his forthcoming report and its many recommendations. I already knew there was nothing in it for us. He asked me for $600 and I gave it to him. This is where I pray she doesn’t remember the day I took her to a dickhead, who made her feel less than who she is, and paid him for the abuse.

We got to the front door and she made a run for it. For the first time, she ran on to the road. And do I blame her?  I scooped her up and we walked into a bakery. I bought her the largest gooiest piece of sugar that desperation can buy and she wolfed it.  Next door I bought her a blue and white striped dress that she would never wear. I peeled the parking ticket off my car and she fell asleep as I called my beloved and cried. 

means: What I wish someone had told me about a Psych Assessment

What is it?

Having graduated from the medical school of Grey’s Anatomy, I was really out of my depth with the Psych assessment. My beloved and I were surprised to think our 5-year-old needed to see a psych.

Straight facts:

Either a doctor or a teacher will ask for the assessment.

There are lots of Psych tests.

The point of inquiry, the thing your doctor or teacher wants to understand – intelligence, behaviour, learning blocks, memory, information acquisition, concentration will determine which test is used.

The Psych will refer to the test with letters.  Google later.

For a good overview from a reliable source: Women’s and Children’s Health Network. https://www.cyh.com/HealthTopics/HealthTopicDetails.aspx?p=114&np=122&id=2942

For Grown-ups

Research your specialist.  It takes 5 minutes to google a name and see if a mum has reviewed the specialist. Ask your referring doctor if the Psych is good with kids. How an assessment is conducted can impact the result, the report and most importantly the child.

Have a pre-assessment call or email and ask the 5: 1. Where will it take place?  2. How long will it go for? 3. Are you set up for kids? 4. Is there parking? 5. What is the cost and the reference number for Medicare/Private health? A good specialist will shoot through a pre-prepared document.

Get on line and check Medicare and your private health cover if you have it. Being free to support your child, means that you are not under financial stress.

Confirm the assessment the day before. It can avoid a missed school day by making sure the assessment is going ahead and often confirming the appointment ensures that it does.

For Little ones

Have a bath time or bedtime chat about an upcoming assessment and explain that these tests are for all the people in the world, and there will be lots of questions lots of people can’t answer. Delve into the idea that mistakes and errors are where we find the diamonds, where learning begins. This is the same for any school test, that feeling of not knowing something, as uncomfortable as it is, we can learn to recognise it as the first feeling towards learning something.

Take sustaining snacks that help focus. Bananas, nuts if it won’t kill them and dried fruit. Water, water, water….and something from the treat box. This was a shit deal. They should get a reward.

Take UNO, because it’s the best, and if you can’t get out and have a walk during a break out time, a quick game of UNO can always take them to the familiar and safe.

If there is going to be a discussion about preliminary findings hook them up to a device. They don’t need to hear that they are out of range, it already follows them around at school. If you cannot secure distraction make a phone appointment for the next morning.

Later that day

Meltdown or dial it down. In all likelihood the assessment will fry them so expect some mental, physical and emotional responses. Decompress from the day with comfort food, long baths, cuddle time and lots of stories.

My beloved wanted to know every detail. I couldn’t talk about it.  So, have your treat lined up. I’m talking about distraction and comfort. I have a friend who retreats to Twilight and another who finds wine and Gossip Girl is her jam. Feed yourself in a way that refuels your ability to tackle this stuff head on. I stand in a hot shower, cry a little, lean against the tiles and I know when it is time to get out and get on. That’s my means.

Evaluate the specialist and the process so that when that report arrives, you see it in context. If you don’t think the report reflects your child, you don’t have to show that report to anyone. We didn’t.

Finally, 7 years on, we have our routine, an assessment isn’t the focus of a week, it’s just something that happens on a Wednesday before her brother has Taekwondo.

tools: Assessment checklist

  • Research specialist
  • Pre-assessment call to specialist: Could you please tell me a little about…
    • the assessment and your process?
    • how long will it take?
    • can you please confirm the cost and reference numbers for Medicare/Private Health?
    • what is your address (google directions)?
    • can you recommend parking?
  • Contact Medicare/Private Health
  • Confirm Assessment day before
  • Cover process with the child
  • Game day bag:
    • Paper and pen
    • Snacks
    • Games
    • Device
  • Dinner
  • Chillax plan